Monday, 4 July 2016
Nostalgia. To quote Phil Daniels, I love a bit of it.
The Sue Ryder charity shop, to which the typewriter was previously destined to go, is, by a recipe of some luck and good placement, among a very select few of my favourite second-hand repositories. Before I realised that abundant treasures so often rested behind the doors of charity shops, I was so ashamedly snobbish, thinking that I was "better" than venturing to one.
What. An. Idiot.
Happily, for charities and me, I have, for two decades, fully understood the marvels of the people who work there, as well as the reasons for the shops and the stock they're given.
As is usual with me and my depression, I only notice that my mental (in)stability is at such a concerning level when I consider that not waking up in the morning is preferable to anything else. During my most recent emotional and mental breakdown, my wonderful GP and I agreed to increase my anti-depressant medication. I'm certain that that's had a noticeable influence on my moods, and my long-absent and now-renewed sense of hope. The way out was blocked. The tunnel got darker. The last of the candles had melted and the flame of the future had fizzled to fuck all. I hadn't quite realised just how lacking hope has been in my mind or soul or whole being, whatever you may call it. Since my GP is wonderful, he wonderfully encouraged [frowned at] me (again) to begin the looking-for-volunteering process. Again.
Only three hours was I at the Sue Ryder shop, and I wasn't doing anything like strenuous or difficult. Such are the physical effects of depression, endometriosis, fibromyalgia, hypermobility, and spondylolisthesis upon me that, at about 12:30 - 2 1⁄2 hours after I arrived to help - I felt heavy and stiff, with endo flaring up, and my back and legs feeling full of leaden aches. (I listed the ails alphabetically, did you notice? I'm aiming for the full 26. I've heard you get a limited edition kettle if you collect them all.)
The day after, I ached and was decidedly energy-deficient, and with the kind of post-activity fatigue which renders me unable to do anything, much, except stare at nothing in particular and mumble incoherently. Wiped out. Exhausted. Broken.
Feeling so pained and drained after just a little less than three hours of "light housework" was a distressing reminder that I'm really not so well. Complacency, existing every day without changing routines (or having any), or pushing the limits of capability, by even a minuscule fraction, is not good for my soul. I know it. Trying to do something I wouldn't usually do, no matter how passionately I feel about doing it, unfailingly uses so much energy emotionally and physically. It doesn't deter me from doing it again, or doing it less well or for not as long.
It's just inordinately difficult to get through those post-activity days, and to remember that those "hangover" symptoms won't last for much longer.
Stamina? I used to have that. For now, I have a still-sealed DVD of Life of Brian for £1.95, a Portmeirion RHS cup and saucer for £2, two decent-sized floral jugs for £10, and a kosher West Ham shirt for my Dad for £3.25. I bloody love charity shops.
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Friday, 29 April 2016
Cancer was the reason our lives were irreparably changed, seven years ago. And exactly seven year ago today was when my Mum had to have a mastectomy.
A Sunnier, warmer day than today, it's still unforgettable, the sounds and smells of the ward still lingering in my senses' memory. Or my memory's senses. Or both. Whatever, it's all still there. It's still upsetting to think about.
More pleasingly, today is also the last day of Mum's treatment; the final Aromasin tablet will be taken tonight.
This post doesn't really have any point. I don't think it has Anything New in it. I just wanted to let you know that today is important, and that, if I hadn't posted something today, I'd've regretted it. I wanted to also say that I STILL haven't given up collecting stuff to sell (100% for charity, every time) on ebay for Breast Cancer Care, Macmillan Cancer Support, and Cancer Research UK.
Some of you, my delightfully-kind-and-patient friends and readers, will know that my own shitty health guff has become a bit overwhelming in the last few years; I don't feel that I've managed to achieve the being-in-control-of-my-ailments position to satisfactorily sort out the mundane larks of "every day life", never mind the absofuckinglutely joyous "job" of listing and selling and sending the CDs and signed posters and myriad autographs.
What Lisa managed to say, more eloquently than I could, is that the bastard that is cancer affects everyone. Without any doubt in my mind, being the person who has it can be wholly destructive. I don't know how people do it. I don't know. I know that they do. But I don't know how.
I think that, sometimes, some people can forget that the family members and friends who see and watch the physical and mental changes can suffer as much as, albeit differently, the person who's been diagnosed. It's not only the person who has to have the surgery and treatment and procedures. Everyone has to get through it, somehow. In some inexplicable way, everyone has to grasp at the elusive, invisible threads, to hang on, to guide them, to find any kind of way through the emotional and soul-draining hell of cancer.
Today, we are taking it easy.
Today, we are blanketed, we are cuddling cats and mourning 21-year-old Pieman.
Today, we are drinking hot and cosy drinks and dunking biscuits.
Today, we are watching Jericho (and Cousin Rose-spotting!), Gemporia, and Poldark.
Today, we are still here.
Tuesday, 5 January 2016
A whole decade. Ten complete years since my Little Nan went and died with a broken heart. I still believe it was "her time" and that she was ready to go. Having that belief didn't, and still doesn't, of course, make it any less devastating, nor the grief less immense.
I can't count the number of times my likeness to hers has been mentioned by so many people, and I smile every time. She was lovely.
So unspeakably proud and brimming with admiration am I, knowing what my Lovely Little Nanny Annie had to endure as a child - the poverty, the losses and grief, the war.
She was incredibly generous, exceptionally so.
She was dryly funny.
She was f-a-n-t-a-s-t-i-c in her stubbornness.
She had wavy, unbelievably-thick, Irish auburn-brunette hair (exactly as mine *smugface*).
She never missed an episode of Coronation Street if she could help it.
She was proudly, brilliantly, East London working class.
She had the softest skin, and passed her love of rose- and floral-scented talcum powder to me.
She was superstitious; her funeral was on Friday 13th. The irony was vast.
She loved her soft, cosy, knitted cardigans, with shiny gold-tone buttons.
While I can believe that it was ten years ago that she died, I can, likewise, believe that it was yesterday, so vivid are my memories of the day.
I wear her wedding and eternity rings each day with immeasurable love and gratitude, knowing that she wanted me to have them, as her only Granddaughter.
My brother, her only Grandson, and I lost a second, loving, utterly superb Nan on that Thursday in 2006. And, I'm fairly certain that I speak for us both when I say that we love her every day, and still miss her delicious tea and biscuits, hearing her refer to people she didn't like as "bleedin' sods", and her smile-inducing greetings of, "'Ello, mate", with that brilliant chuckle that was uniquely hers.
My last words to her were, "I love you, Nan." - and love her still, I do.
Sunday, 21 June 2015
Nicely general-period-pain article about natural relievers in The Independent. Never going to be geared for the terror of endometriosis/adenomyosis pains but still... I dared to glance at the comments. "Man-up" and "stop moaning" and "anything for a quiet life" said by men who were, I think, trying (and failing) to be funny.
When it comes to "normal" period pains, I expect they hurt. I wish they didn't. I wish that they didn't hurt or disrupt plans and exciting times.
I only ever had endometriosis period pains, and the ones I had were (as you may know by now) so appalling and all-consuming that I had to have about 100mg of morphine every day, not just with periods. Every. damned. day.
Point: my Dad was and is not all ewwww and icky and "get on with it" when it came to periods and women's things. He could see how awful it was for me and didn't shy away from comforting or helping when needed. He empathised. He cared. He loved. (Past tense because of post-period era.)
I have some of the most kind and empathetic-to-period/end-trouble male friends I've known. Mark, Simon, Wombat, Lucas, Stephen, to name only several. They have been infinitely more kindly about it all than some female (now-former) friends. ("Have you tried walking when you're on?")
The dismissers are so empty when it comes to empathy and kindness. Obviously. Baffles me. I'm referring to these dismissers here and throughout, and absolutely not all men. I'm am an equalist. Gender, colour, belief, hair colour, bra size, nationality, all that. (Eloquent.) No person has a more worthy life than another, is how I see it. I cringe and feel irritated when I hear some women do their usual man-bashing and "stupid men are stupid, HE FUCKING LEFT ME. I HATE MEN." kind of thing. Yeah, we get it, you loved and lost A MAN, and you hate and don't forgive HIM. We get it. I say "men" here, I mean the idiotic dismissers mentioned above.
Still seeing so much beautifully-misfired misogyny and sexism on a subject which was hidden and played down (and still is) by the people in charge (i.e. men) shows that the mindsets of those blinkered dismissingers are SO FAR in the past, so opposed to feminism/equalism that they embarrass themselves with such lack of education. Some said they thought women who have period pains should be grateful that there are painkillers and medications that help some women.
Really? Is that meant to make me rethink my humility? Or put my pain in to perspective? Someone else is OK? Great. We all feel so much better now you made us see it like that. Haven't we been silly?
And the number of times endometriosis-related pains have been apparently-wilfully ignored by doctors - played down, underestimated, plainly ruled out as even existing - can surely only add to that idea of "it's just a regularly-occurring thing that you all have to live with so why are you still complaining?". All for attention. Obviously. We love it.
"You told us it's a taboo subject so we don't talk about it" - "you"? You mean, women? Why is it taboo? Who said it was? And when? Many years ago? When women were not allowed to vote or work? Equality? Pah. Should stay where they belong. Because men said so?
By that way of thinking, does that mean that all women are to blame for you having a problem with talking or hearing about wombs, and bleeding, and sanitary towels, and stained knickers and bedsheets and pyjamas, and the fucking PAIN OF IT ALL? That's not women's faults. Blame blame blame. Don't you ever stop?
If you find a natural solution to your pains, I truly am glad for you. To have a seemingly well-meaning boy tell women so matter-of-factly that "there are options" for treating period pains... it's so unbelievable that it's hilfuckingarious.
Friday, 19 June 2015
See, I know I'm bitchy and wretched when the hormones rage. I've known these facts for a painfully and depressingly long time. I do not require reminding whenever someone with "issues" decides to blame me for how they feel when they're having another tiresome tantrum.
No person can make anyone else feel anything emotionally. If you blame someone for how you feel, you give them control of your emotions, of your life, and it means that you don't take responsibility for (or "ownership" of) your own anger or jealousy or feelings of inadequacy or, more wonderfully, your happiness.
No-one made me sad about something; I decided (although, obviously, it's more complicated than "wanting") to feel that way, probably because I care.
No-one made you feel less than good; you didn't believe you were.
It took me decades to realise that, by changing how I think, I know and believe I can and do care less about things that really are not important - or important enough - to me: I AM ALLOWED to not waste my time and effort and golden, priceless energy on worrying about people who don't deserve my precious time; I CAN not concern myself with opinions of people whose only apparent enjoyment is berating so viciously people they don't like; I CAN not pretend to be interested in something which bores me and not worry about protecting everyone from bad things.
We CAN feel those things and not feel guilty. No-one will make me feel guilty for being ill, for being depressed, for not having a job, for being me. I do not let them.
It's been a liberating and difficult process. *shudders at "process"* I didn't know I was capable of not feeling guilt for not doing more at home. I didn't realise until far too late that other people can not make me feel anything, emotionally. Anything. My mind is mine.
Being strong-willed and determined and confident in oneself is not a universally easy way to be. I wouldn't claim to always believe in myself. Health, both physical and mental, are constantly influencing me, in every way, whether I'm aware of it or not. But I will always know that, however and whatever I feel, it is not because someone else has controlled my emotions.
Your mind and your heart and your soul are all yours, and no-one can ever make you be or feel anything. You are, in all probability, magnificent and wondrous and capable of stupendous things.
And my exceptionally-difficult-to-cope-with hormone imbalances still don't mean that other people aren't sometimes whinging, selfish, arrogant little fuckbollocks. It's not actually always me with a problem, or mood, or proverbial bee in my proverbial bonnet.
I am not your emotions, and you are not mine. And that takes us back to the women's magazines of cruel criticising, and blatant bullying, and you'll-never-be-good-enough-you-stupid-big-fat-failure "journalism".
More often than I wish I knew, I've seen people let themselves believe that their emotions are dictated by others. And I've seen both kinds of people become passive-aggressive dickheads.
YOU MAKE ME SO ANGRY.
YOU MAKE ME SO UPSET.
YOU MAKE FEEL STUPID.
Really? Are you sure about that?
Monday, 2 March 2015
Last year, nearly a whole year ago (18th March), I lost my uterus. How careless! I have a beautiful 5-inch-long scar on my belly. Hooray! It is my favourite of my dozen or so scars, not least because I think it vindicates what I said for about 20 years.
My pelvis is still being an idiot, continuing, as it always bloody does, in giving me the pains and aches it always has (since I was 12). Only my left ovary remains of my reproductive system, messed up as it was. GOOD BLOODY RIDDANCE. Not so bloody anymore. HA-HA. IN YOUR FACE, WOMB.
I have to keep my ovary because my team of quite super doctors and I don't adore the prospect of having crumbly bones, thanks to osteoporosis.
This is endometriosis for me. This week is Endometriosis Awareness Week. This month (in some places on our glorious and wonderful planet) is Endometriosis Awareness Month.
Please, don't suffer.
Please, change doctors if your current one belittles your reality.
Please, don't be scared to ask for a referral.
Please, talk about your pains.
Please, ask for help.
Please, don't be ashamed of what you can or can't do.
Talking about periods and vaginas and wombs and fallopian tubes isn't dirty, it isn't weird, and it isn't disgusting. You are not dirty, or weird, or disgusting if you want to talk to someone about your pains and periods and fears. I'm one of millions of women told, for years, it's all perfectly normal. It wasn't. It isn't. And I'm one of many millions of women who don't know what painfree means any longer.
Talk about your bits! VAGINAS! FALLOPIAN TUBES! OVARIES! BOWELS! POO! DYSCHEZIA! Open your bowels and talk about endo.
Friday, 23 January 2015
1. HI MY NAME IS... Lucy, and I have experienced (and still do experience) acute clinical depression, severe anxiety and panic attacks, suicidal contemplations, and OCD.
2. My mental health has affected every part of my life; friendships, sleep, some semblance of a career, relationships, appetite, education, hobbies, my closest family, and so many more aspects have, in some way, be it enormous or weeny, been affected by my mental health.
3. My greatest source of support has been my parents, as a whole. Together. As one... "thing". (Sorry Ma, Pa.)
4. My hope for the future is that a unicorn will swoop me away to Sparkly Rainbow Land. Failing that, I hope that I'll keep on gaining confidence and be able to volunteer and/or draw for cash, again.
5. I'm taking 5 on Time to Talk day because mental health isn't something to hide or be hidden. So many people experience some kind of mental health trouble, and I think that no-one who has felt anything from a hint of anxiousness or the worst of bi-polar ought to be ashamed.
Accepting things that I can not change has been one of the hardest challenges in my life, and, since I did, I loathe myself far less than when trying to fight it all. Ultimately, when fighting so fiercely to deny what was real, I failed to progress at all, and felt even more miserable, even more of the time.
I don't like any of my mental bothers but I have learned, grudgingly, to accept that they are part of what makes me me. Without them, I simply would not be who I have become, and I'm a lot more kind to myself now (sort of), even though I still occasionally have a panic attack and frequently have sobfests. Or maybe it's because of, not in spite of, those things.
Come, join me on my mental journey! Find me online, but know that I may take a year to respond. Not a year. Exaggerated. A while. Probably.
(This is openly-shared on here and on facebook, so, if you want to pass it on (with credit where due, obviously), please do.)
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